For the latest publications of this PI visit Lotte Haverman – Amsterdam UMC
Haverman, L. (Lotte) l.haverman@amsterdamumc.nl
| Research line | Sickle Cell Disease |
|---|---|
| Department | Pediatric hematology |
| Research Institute(s) | AR&D |
| Description | This research line aims to reduce the burden of pain caused by Vaso Occlusive Episodes in Sickle Cell Disease by early identification and preventive interventions. The second domain of research in SCD is the effect of Sickle Cell Disease on the brain. |
| Seniors | • Cornelis van der Torren, Postdoctoral researcher • Karin Fijnvandraat, PI |
| Projects | |
| The RELAX Study | Mariana Nery contributes to this RCT to investigate the effect of EMDR in reducing Pain Interference in Sickle Cell Disease |
| The ONSET Study | Noa Ijdo tracks early neurocognitive development in infants with sickle cell disease using eyetracking |
| The BRICK study | Noa Ijdo contributes to this longitudinal cohort study that identifies the neuropsychological development as well as changes in brain imaging on MRI of children with SCD |
| The BEATS Study | Robin Rijnhout aims to use vital signs captured by wearables for the early detection of Vaso Occlusive Episodes |
| Research line | Patient Reported Outcome Measures |
|---|---|
| Department | Child and Youth Psychiatry |
| Research Institute(s) | AR&D Amsterdam Public Health |
| Description | This research line focuses on evaluating the psychometric properties of various PROMs, contributing to the development of novel systems for measuring patient-reported outcomes (PROs), such as PROIMIS, creating CorePRO sets and studying the implementation of PROMs in routine clinical care. |
| Seniors | • Maud van Muilekom, UD • Hedy van Oers, UD • Michiel Luijten, Postdoc • Lorynn Teela, Postdoc • Ellen Elsman, Postdoc |
| Projects | |
| The PROM4RARE study | Nadia van Silfhout focusses on the development and validation of a core PRO and PROM set for individuals with rare genetic diseases associated with intellectual disability. |
| The GPROM optimalisation study | Anouk Groenewegen investigates how the generic PROM set is used in clinical practice and how the implementation of the PROMs can be optimized. |
| The SIMPATHIC-PROM study | Tom Steenbergen develops a generic core PRO and PROM set for individuals with rare neurological, neurometabolic and neuromuscular disorders to be used in a drug-repurposing trial within SIMPATHIC. |
| Shared-Decision Making in Pediatric Physical Therapy | Selina Limmen focusses on the implementation of PROMs via the KLIK PROM portal in 12 pediatric physical therapy practices, to facilitate SDM. |
| Identifying issues related to sexuality in men and young women with bleeding disorders | Tessa van Gastel contributes to the project focused on identifying issues related to sexuality in men and young women with bleeding disorders as well as validating a PROMIS questionnaire to assess these problems. |
| The Cure4Life study | Esmee van Zon contributes to the PRO(M) set for parents of children with a chronic illness is developed, and qualitative research about impact of gene therapy |
| The Inclusive PROMs study | Lisa Stikvoort focusses on the development and validation of comprehensible PROMs for people with low literacy, as well as validating PROMs in other languages for people with a non-native background. |
| The PROMs for (speech)motor impairments study | Juliet Hondtong) focusses on the development and validation of relevant PROMs for people with severe (speech)motor impairments. |
| Validation of a PROM set for Pediatric Physical Therapy | Dorinde Korteling focuses on the validation of PROMIS in pediatric physical therapy. |
| The use and validation of PROMIS for adults with sickle cell disease | Aida Kidane contributes to this project on the use and validation of PROMIS for adults with sickle cell disease |
| The use and validation of PROMIS within pediatric oncology | Anne Westerweel contributes to this project on the use and validation of PROMIS within pediatric oncology |
| Research line | Pediatric psychology |
|---|---|
| Department | Neonatology |
| Research Institute(s) | Amsterdam Reproduction and Development Amsterdam Public Health |
| Description | This research line aims to chart long-term child and parental outcomes after perinatal problems (preterm birth, asphyxia) and neonatal and psychosocial interventions thereon. |
| Seniors | • Cornelieke Aarnoudse-Moens, Postdoc |
| Projects | |
| The Project Opmaat naar Zorg op Maat | Mana Nasorii maps the barriers and facilitators of interprofessional collaboration, with parents as experts, in the care of individuals with rare genetic intellectual disabilities and challenging behavior. |
| The IPE-C project | Franka Roestt) focuses on interprofessional collaboration in a Transitional Care Unit (Het Jeroen Pit Huis) to ultimately develop a targeted faculty development program and a framework for a continuous care evaluation model |
| The HIPPO Study | Kirsten Muller examines the short- and long-term effects of neonatal and parental stress during NICU admission on child development and parental wellbeing in preterm infants born with a gestational age of less than 29 weeks. |
| The effect of brief EMDR treatment for parents | Esmee Vesseur investigates the effect of brief EMDR treatment for parents —delivered both face-to-face and online—on reducing stress symptoms in parents of chronically ill children. |
| Exploring the effectiveness of EMDR to reduce pain interference in children with sickle cell disease | Mariana Nery works on a study exploring the effectiveness of EMDR to reduce pain interference in children with sickle cell disease |
Last edited: 05-03-2026